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Step Up for BPAN: Climbing Snowdon for Action, Research, and Our Children’s Futures

Updated: Jun 28

✨ What a day to remember! ✨ On Saturday 21st of June, 43 incredible people came together to climb Mount Snowdon in support of Action for BPAN. It was no small feat, the mountain was relentless at times, but what shone even brighter than the challenge was the unity, strength, and love shared among the families and supporters who made the journey.

From the moment we gathered at the base, there was a sense of something bigger than all of us. The hugs, the group photos, the children’s laughter, it was emotional, hopeful, and filled with purpose.


Each step we took was for the children we love, for their futures, and in support of the urgent research we are so desperate for.

Among the group were also some amazing young climbers aged 15, 13, and 12 years old who showed unbelievable resilience and determination. They inspired us all.


Together, this was not just a climbing a mountain, but a symbol of what this community is capable of. Every parent, friend, grandparent, and supporter who took on this challenge gave so much, arranging childcare, travelling long distances, taking time off work, and stepping far outside their comfort zones, all to stand in solidarity with families affected by BPAN.


Thanks to this amazing effort, and the generosity of so many who donated, shared, and cheered us on from afar, we’ve raised an incredible £31,821 so far, with an additional £5,559 in Gift Aid. That’s over £37,000 for research and action! This achievement shows what we can do when we come together.


To everyone who climbed, fundraised, or supported from afar Thank you! From the bottom of our hearts. 💙🩷



And to those who are still planning to complete their climb at a later date good luck! We’ll be cheering you on every step of the way!


This climb may be behind us now, but the mountain ahead, funding effective treatments and a cure for BPAN is one we continue to face. Knowing we’re not climbing it alone makes all the difference.


 
 
 

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